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To Those Who Struggle

April 10th, 2009

From Betty

To those who struggle – do not lose hope. Do not give up.

I am a 74 year old woman who spent 13 or so years in therapy [starting at age 58] and 5 or 6 years on Prozac. I now consider myself “cured” in that I no longer wish myself dead and/or fantasize about how to get myself dead. I don’t even want myself dead! I no longer shoot myself in the foot nor isolate myself for fear of shooting myself in the foot.

I move forward.

There was/is a lot of mental illness in my family and a fair bit in me. After many mis-matches I finally was lucky enough to get a good psychiatrist who was capable of treating me for so many years with patience, wisdom, tolerance and wit. They aren’t easy to find but they are out there – keep looking! He wasn’t perfect [no one is – even as you and I!] but he re-parented me, educated me and helped me.

Eventually he gave me Prozac which, in my case, was a miracle drug. I no longer need it – I think it permanently boosted my serotonin – the glass remains half full rather than half empty. I think I am being honest when I say my overriding feeling about living is now gratitude. I feel grounded.

I wish you the same good luck. Perhaps the last chapter of our lives is the most important chapter?

The Fire This Time

March 19th, 2009

Guest post by JB

My mental illness added a lot of memorable dates to my Mental Rolodex:

January 2, 2007—the end of the engagement
March 16, 2007—diagnosis of Bipolar Disorder, Type II. The beginning of The Fire This Time.
March 22, 2007—prescription for Lamictal, the day we started dating again.

They don’t make anything to commemorate diagnoses of mental illnesses. There are no “Happy Anniversary!” cards, no party hats or banners or streamers. No happy horseshit, humorously deprecating cake inscriptions.

Nonetheless, I still “celebrate”it—mark the date in my head, take time out in the day [as if I could help it] to think about everything that led to that point, and—more importantly—all the things that proceeded out of it. My closest friends know, even, about the day. My best friend in medical school is especially good at keeping track of these things, with a certain flair for understanding what this day must mean to me. He indicates the note in the calendar of his Treo [“Jenny’s BP Anniversary”] and remarks, at lunch, “Let me be the first, and last, to wish you a Happy Anniversary.”

I smile, my new-ish this-is-my-smile smile. Whereas my old smile was wide and bright, fake, this one is new, almost a smirk. The left side of my lip pulls back and slightly up—a smile, to be sure, but sometimes only if you’re careful to look. I have a new dimple in my chin on that side from too much of this smile. See—I smile a lot, and for real. I laugh too. Even in these days, these two years of “I have a mental illness, but it doesn’t have me,” these almost-two years of “pop-a-pill and get some fucking sleep,” these two years of “are you sure you took your meds last night?” and “where do we go from here?”

I am fighting the urge to email my testing psychiatrist. “Remember how you told me I would succeed in medical school?” I want to write. “Remember how you told me bipolar disorder is the most treatable illness?” “Remember how you said I would be ok?”

“You were so right.”

So, on this day, I laugh about it and I cry about it, because I have to. Because you have to do both. As has been expounded by other bloggers in much more eloquent tones, the bitter and the sweet are foils for each other—each brings out the taste of the other. Like measuring kosher salt into the caramel I make in my kitchen, my tears bring out the pureness of my laughter and my half-there smirking-until-I-carve-dimples-in-my-face smile. The moments when we yell at each other or are too stunned by pain to speak, the moments when the hurt is suddenly sharp [like hitting your hand on the oven rack when you pull something out] only serve to enhance the beauty of the following moments—when we forgive or resolve; when in the middle of the night, his arms shoot out and draw me in, his lips at the nape of my neck; when he sends a text message the day after a fight that says, “I love you, ok?” [a code phrase, for us—a combination of” I love you, I’m sorry, I’m an asshole and sometimes so are you.”]

The Fire This Time, I call it, a nod toward James Baldwin [a man who knew a whole world of hurt] and his book “The Fire Next Time.” Because the Next Time isn’t enough, and never will be. Turning a corner around March 16th, 2007, I knew this was it. That The Fire This Time is all I get—that this life with these hues are all I have to work with. So it had better be good, and it had better be passionate. The Fire This Time is in everything: how I work, how I play, how I love. It’s the bitter, the sour, the sweet, the salty, the savory—it’s everything it can be and everything is has to be. It’s the love of a boy who stayed through the hurt; the laughter of the friends who are celebrating it with me; the concern of a parent who still can’t quite understand what bipolar disorder is and what it has to mean to me. The reassurance of one testing psychiatrist who said it would be ok, and my tearing-up half-cocked smile [the bitter and the sweet] when I remember his kindness toward me.

It will never be said, of this life, of The Fire This Time, that “everything was beautiful, and nothing hurt.” But that’s the point, I think. That’s it.

Sometimes It’s Easier Being a Nutty Buddy

March 16th, 2009

Guest post by Carmelo Valone

Some days I wake up and feel fine and overjoyed to be alive and in the ‘real world’. Other days I dream of my former life, a life of ease and sorrow. It was full of simple joys, like eating a nutty buddy cookie and having no aspirations other than smoking cigarettes, taking pills, and watching Melrose Place on TV.

When I am at a Hollywood party I often feel like screaming, “You can’t talk to me like I’m normal, because I am not.” I really just feel like saying, “I have spent time in mental hospitals, and I don’t just mean a ‘summer’ when I was 17, like in some wannabe hip, surface-touching Lifetime channel movie starring Donna Mills as the tortured parent of an insane teenager. I am talking about those dark, horrible places-the tunnels of McLean Psyche Hospital wards in Massachusetts that Sylvia Plath had nightmares about, in and out for years. Horrors you wouldn’t want me to delve into while you’re holding that designer cocktail.” But most of the time I just smile and decline a drink or two. Then one night I had a movie director telling me, “You are probably the most normal/sane person I have known in Hollywood.” I certainly wasn’t the first ‘crazy’ person living in Hollywood as we all know.

All I could do was laugh. That’s all I could do-I mean I couldn’t tell my at the time boss that I was, in fact, a former drug-dealing, career mental hospital patient that survived a coma; let alone that after all of that I spent most of my inheritance going to UCLA to figure out how to trick those horrible things that trick my brain into thinking its normal. How could I tell him about the dyslexia and the lack of education, the punk rock-ness and the emotional mess that I have worked out through 20years of therapy-like in some 1970s Woody Allen film? I’m a person who spent all his money trying to figure out how to use his voice in a way where others can understand the language. Now I am just I just trying to live it.

After all of that, could I tell him that I had other fish to fry-pitching screenplays, like every other idiot who comes to Hollywood with a dream?…..I try to convince myself that it’s like in the early 90s-that pitching is just like trying to convince psychiatrists that I am ok to walk on the hospital grounds alone: I can be trusted to use a razor on my own now-they don’t have to watch me anymore. It’s just like saying, “Yes my script is the best of its kind, and it’s so very original”; even though Joseph Campbell has had over 1000 lectures on the importance of us all knowing there is just one story-the reluctant hero-. Lie, cheat, steal-just be that hustling artistic soul. I tell myself I will be fine. I then remember that ‘Imagination’ saved me when I was inside those safe, locked, and medicated walls-now it has to make me tons of money. It all seems so baffling at times.

Institutionalization – it’s a horrible thing. It tricks you into thinking that life is living inside a box, a heavily medicated box that once you get out of-makes the rest of the world look like the real insanity. The people on the outside dressed in suits that jump off buildings if their stocks crumble into nothing are the real lunatics you tell yourself-not you-and not anymore. Sometimes on particularly rough days in the hospitals, I’d be comforted in knowing that the only thing that never changed was the presence of those delicious and silly “Nutty Buddy” Cookies in the dank institution cafeteria.

These days I will wake up screaming 10 years later. I might look normal, but why do I have these horrible nightmares a few days a week? Most of the time I might write them down-as most of the time they are such vivid dreams about my past hospital stays that I can smell the rubbing alcohol they used to clean –the ECT machines off with. But wait –I never had ECT.

The real truth is I lived there-in the institution-during the death of Kurt Cobain and the day OJ Simpson tried to make a run for it. You remember the man who blew up that building in Oklahoma City-he was the real nut, not me, right? I just got sad-I didn’t kill. I did drugs, cut myself, delivered drugs, and then slept with other mentally unstable types. I hung around the homeless that live in Harvard Square. The only real father figure I have had was a 6’4 homeless black man with dreads named Mister Butch. I spent holidays with him even-he was one of the only friends I cried over leaving behind-because I knew in my heart it would be hard to talk to him again without a phone or address-or email. I can’t say much bad about Britney Spears because I was 10times worse on my best day.

And finally I wrote a book about my life in the 1990s, my institutionalization and the incredible levels of self destruction that are just too hard to explain to the ivy league book agent crowd-because you see I’m not John Nash and I didn’t solve the world’s problems, just my own and I can now write about back then…back then when I had no idea how to express anything. I can write about my heart, its dissection and re-construction into one piece again.

How do you explain any of this to new people, normal people, or anyone? Who would understand?

Those were my ‘college days’. A sick college –with out of control frat brothers and sisters who would never admit to being a member of it in public or are mostly deceased by now.

I can watch Marlon Brando’s acting in Apocalypse Now-and realize that that was me in the 1990s-all my friends were from the hospital and they all loved me and looked to me for answers. I seemed so sane compared to them back then-maybe I was more sane because I choose to hide out inside-where it was easier. Then the doctors told me I had to get out. So am I much better now because I haven’t overdosed or attempted a real suicide in over a year. Is that healthy?

Now I have a different pickle to work out-forget about feeling less crazy-I have to look sane too. And remember-I have no work history, school history, or any history-what do I tell people I was doing for years on end? I feel like a double agent or a CIA operative half the time, unable to talk about my past freely.

Have I killed terrorists on some secret mission? Not really.

How about this:

I was at college……”where’s your degree?”

I was working…“where’s you employment history?”

I was writing a book….”where’s your book?”

I was doing time…“where are your prison tattoos?”

None of these answers are right. It’s just simply called institutionalization. Now all I have to worry about is will those same assholes –friends –people I love–will they treat me like a moron or a lunatic now-now that I’ve outed myself? Now that everyone knows the truth, who will take a real ‘lunatic’ seriously? People seem to only like the ones that hide their lunacy-the people who become powerful enough to rip billions off of regular people and then go on shooting sprees….not writers like myself. We are the barely educated, dreaming writers like Charles Bukowski, William S Burroughs, and now me-the uninvited.

Time will tell. One thing will always stand fast: I have the freedom to get on my bike, and go to the store, and grab my very own bag of Nutty Buddys…and feel safe…and just be me. Freedom. It’s scary, empowering, and all encompassing, but I know now it’s mine. Baby steps, I’ll say, baby steps.

Carmelo’s – Blog, MySpace, Twitter

I Can’t

July 8th, 2008

By Kay

One of the hardest things for me to do is to say that I can’t. It goes against the very positive message that I’ve had engrained into me my whole life, that I can do anything. Saying otherwise feels like giving up, and I hate that.

The psychologist I was seeing last summer never suggested that I couldn’t do things. The issue at the time was the same as it always is, that I was going between unemployed and underemployed, and my parents weren’t pleased by it. My psychologist suggested that instead of letting my depression drag me down to the point where I was sleeping instead of working, I should see working as a step in treating my depression, and most of our sessions were spent discussing ways to become employed, her encouraging me to take on more work, even suggesting places for me to apply. When I did start working full-time, my 9-5 schedule kept me from staying in bed all day, and both my psychologist and my parents declared that it was therefore helping me to get better. I didn’t tell them that I was struggling to keep my eyes open at my desk, and spent every lunch hour napping, and that I was still miserable.

Then I went back to school, and was no longer working, and was struggling with my classes, and my parents were on my case to get a part-time job during the school year. After a few months of going lower and lower, I found myself trying to explain why I hadn’t gotten a job to my new psychologist at student counselling.

“So, you’re having trouble keeping up academically, and you’re sleeping through classes. And you’re exhausted all the time. And you were hit by a car, and you’re still recovering from that. Well, it sounds to me like you’re not in any position to be looking for employment on top of all that, not if you’re not going to be thrown out for not paying the rent any time soon.”

“But my parents-”

“Your parents are right, you’ll have to work at some point in the future. But maybe right now you can’t, and that’s okay.”

A few months later I was referred to a psychiatrist, who diagnosed me with ADHD. I tried to articulate to her how exactly I managed to lose things and forget things so much.

“It’s not as if I want to, it’s just that when I need to remember something, I don’t know how to make that information be in my head at that moment. I’m always thinking about something else, and I’m not even thinking that I should be trying to think of what I need to remember.”

“Of course. You don’t forget thing because you’re trying to. It’s not even because you’re overly indifferent. You would remember if you could, but you just can’t.”

Both times it made me feel a lot better to think that I couldn’t, because if something is truly beyond my limitations, then it means that it’s not really my fault. It’s difficult to explain it to a lot of people though. I have a lot of conversations, especially with my parents, along the lines of “what do you mean, you just can’t? Is there something physically stopping you? Have you been tied down or something?”

The idea still bothers me a lot. I hate to think that I have limitations, and I hate even more to admit it to others. And I never want to use my problems as an excuse for not trying hard enough. But a mental illness by definition means that sometimes I can’t. If it didn’t limit me, it wouldn’t be a mental illness, because there would be nothing wrong. So I’m trying to learn to acknowledge those limits, and work from there.

Originally published here.

Depression and Generalized Anxiety Disorder

March 21st, 2008

By Michelle

Depression and Generalized Anxiety Disorder is what I have been told for the last 9 years and I believe the Doctors. What does this mean to who I am and what my life is? I do not care what it is called. I have spent many years trying to define it and understand it in black and white. I have found that it is impossible to define as it changes daily.

I was first diagnosed with situational depression, but I realize depression, the anxiety, has always been there. Looking back to when I was a teen, I can easily see it now. But no one talked about it then.

Now I feel strongly about it. Everyone has something and my something is this. If I am afraid of it, others will be too. If I shy away from it, others will shy away from me. I need to be strong and I need to write (and take meds and see a therapist) to be strong. I need to keep believing that none of this makes me a bad or lesser person. I love the days when I can actually convince myself of this.

The whole decision to have a baby has brought thoughts about this to the foreground again for me. Having a baby is something that I want more than anything (ok so forget about the part when I was so scared I thought I did not want kids) and yet I am scared to death, but I cannot let my fears define me. If we do, it wins and I lose. So I write.

Please don’t get me wrong. I have my bad days, weeks and even longer when the depression just gets me, and yes sometimes it wins. I truly believe that my depression in a chemical imbalance and I believe that for long term depression sufferers that this is at least partly the case for most of us.

I have to believe that somehow I will be able to come off the meds I need to during my pregnancy and be OK. At the moment I am tackling it all with the positive approach – I CAN DO THIS. We’ll see how that goes when I actually have to come off the meds in a month. I have a good team of doctors both medical (OB/GYN, Endocrinologist and Diabetes Nurse Practitioner). I also have a darn good a psychiatrist that I have been with for 7 years. I want to try and be med free for my pregnancy. If it is not meant to be and I need to be on an anti-depressant when I am pregnant, no I will not be happy about it, but I will do it and I will do it as safely as possible. Depression can post its own set of risks to an unborn baby and I don’t want that either.

Through all of this I have questioned myself and who I am more than ever before in my life. Can I add “mother” to the list of who I am? I am Michelle – daughter, wife, educational technology project manager, compassionate, giving, self-sacrificing for those who I believe are worth it. I am a reader and writer, a dog lover and a cancer survivor.

I am also someone who HAS depression and anxiety but those two things are not who I am, they are something I have, just like I have diabetes. Both pose risks to the whole baby thing but what worries me the most is the “after the baby is born part” (if we get that far). I do not want to be one of those mothers who always “is resting”. I fear that I will fall short of being a good mother because the anxiety and depression will get in the way.

But I have to believe. We all have to believe that we can do it – overcome the fear of whatever own “IT” – whatever that “IT” is – it is not us, just a part of us and we have to not let the fear win.

Previously posted here.

Moments Like This

March 13th, 2008

By Perksofbeingme

It’s moments like this when I have to write. When the feeling gets so intense that it’s all I can think about. When I hold that razor in my hand feeling it’s cold metal against my skin. It’s at this moment that I know I’m in trouble. It’s at this moment that I have to get out of myself. I have to write, I have to take a cold shower, I have to go running. I have to do something other than sitting by myself in the dark. The lights have to be turned up bright, the music is loud in the speakers and I’m screaming at the top of my lungs. And sometimes, even with all of this, it’s not enough. Sometimes I’m still holding the razor. The feeling isn’t as strong but it’s still there. It is at moments like this when I can’t deny that I’m not ok. I have to get out of myself, and I have to keep my hands busy. At these times, I get scared. I get scared that I won’t be able to keep myself from using the razor that sits on my knee. It’s now that I have to reach out to someone whether I know them or not. It’s not that everything is no longer about it. It’s about the people I could hurt. The fact I could hurt myself. It’s about a decision. I sit here reading the To Write Love on Her Arms story over and over, knowing that if Renee made it then so can I. It’s now that I feel as if I haven’t made any progress, only to know that in the morning I will feel different. It’s now that I cry, letting my cat curl up with me, collapsing into a ball, letting the razor fall to the floor. “The time has come the walrus said, to talk of many things.” And the time is now to talk about the pain and the fear. And through words, I will be ok, and I will survive.

Previously posted here.

Lamentation

February 17th, 2008

From the book BIPOLARBIFURCATION

LAMENTATION
By Kate Arthur
Toronto

When I was young
I thought I was invincible

now old
I know I am invisible

lost friends
lost passions
lost soul

Oh God where are you?
I turn to you and they say nothing

invisible am I
as they walk right through me
a shade of my former self

I lament
God forgive and send your messengers

Dispersed am I
diabolical disease.

The people that walked in darkness have seen a great light: and they that
dwell in the land of the shadow of death, upon them hath the light shined.

Shade to Light.