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Who You Are – Lourdes

April 16th, 2009

People call me/I call myself Lourdes.

I see myself as slowly sinking into the dark, losing me, becoming someone I can’t recognize.

If I thought you cared and you were listening, I would tell you please stop pretending you care and are listening, you say the right words but your actions prove otherwise.

I am struggling with being the most miserable I have ever been. The overwhelming sadness is slowly killing me.

Something I have been keeping a secret is I can now understand why people cut them selves or choose to die. I wonder every day about suicide.

I am trying to think positive and something I’m good at is pretending all is well, and caring for all others more than myself.

I love my cat and t.

I want people to know that as crazy as I am feeling, somewhere there is still a glimmer of hope, a little itsy bitsy glimmer, but I do know it’s there.

Small and Still and Undisturbed

April 15th, 2009

From Dodo

I was diagnosed schizophrenic about nine months ago, and had moved into a new world with antidepressant and antipsychotic medication since then. It was a slow and frighteningly revealing journey. I found out I was pregnant after we took a long vacation in the States over December. My psychiatrist advised me to quit all meds over two days, which I did. Then a week or so ago I miscarried. But the hospital wasn’t sure I had. I had to go in every day for four days for bloods, scans, examinations, internal scans and, eventually, ‘the talk.’ The one where they say that there’s nothing you could have done differently. Being off the meds made me feel different about the prospect of having another baby. Made me feel different about the strength of my relationship with S. We had a very difficult year last year. While we were away, the idea of new year, new start, new baby, new house seemed natural. Obvious. Now I don’t know. I don’t feel any particular connection to the baby I lost. Or to him.

“small and still and undisturbed. its what i want. and what i’m afraid of. wanting because of the absolution that’s bound to it. turn down the lights, muffle invading sounds. be still. and inside. and quiet. trying to find a way to let go without letting go. to be able to achieve distance from the outside for the hours i have to myself. lose the time that’s mine to lose. now that i’ve walked away from my job i have three whole days to indulge myself. with solitude. not solitude. a kind of comforting vacuum.

but the show must go on. P has to be taken to nursery. Adult conversations must be had. dinner made. dog walked. How much of the outside function can i maintain while secretly willing myself further and further away.
the longer i leave it, the harder it is to get back. one day without brushing my teeth, two days without washing my hair. deliberately not taking the meds in case they strengthen my fingernail grip. stop me from disappearing. but not committing, medicating intermittently. enough for ” and how was your day?” and putting on clothes. enough to take P to the park with a neighbour. enough to take the cat and talk to the vet. joke even. enough to give S a plausible account of a productive day. so he doesn’t despise my sloth. seek pastures greener. again.
outside is jagged edges and piercing sounds. clumsy intrusions. it’s too bright, too loud. too personal. abrasive. other. too much.

so few tools to challenge myself to consider the inevitable conclusion. yet here i am. what would happen if i disappeared completely. i’ve backspaced over that line twice. can’t answer my own question. except I can. i know i’ve felt this way before. i know i’ve lived through it. i remember this feeling – that S is a great father and that there’s lots of people who love P. that the clouds would soon pass. how ridiculous. how indulgent i sound. such melodrama. how pathetic.”

Previously posted here.

The More Things Change, The More They Stay The Same

April 14th, 2009

From David

In 1979, when I was 18, my mind had what I colorfully like to call a “come-apart”. I didn’t realize it or even know what it was, but deep clinical depression was growing in me like some toxic black mold. I had no idea what was wrong and I became so sick so fast I lost all ability to even articulate what was happening inside of me. Rapidly I skidded down the slickery slope to psychotic, suicidal hell. Weeeeeeee!!!

My mind soon began to shut down. The simplest tasks took extraordinary effort to complete. Ask me my name and I’d have looked at you as if you’d just said to me, “Tell me what 137 to the 27th power is or I’ll stab you in the neck.” I wouldn’t have been able to answer you. I’d have stared at you with panic and confusion on my face and would have weeped uncontrollably. All because you asked me my name.

I was exhausted constantly. All I ever wanted to do was lie down and sleep, preferably forever and ever. And ever. And ever. But night would come and my brain wouldn’t shut off the internal noise and sleep would elude me. At some point I realized I was going mad. What could possibly be more frightening than being aware you’re losing your mind, losing control of your own self, your own thoughts, and not knowing what to do about it? Relentless suicidal and self-destructive ideas were bombarding and tormenting me. I am, and always have been, a peaceful person yet suddenly my mind was roaring with violent, vicious, grizzly thoughts all directed at me.

I felt as if I had split in two. The old part of me: timid, sweet, funny, generous. The new part of me: dark, powerful, the devil. The thoughts in my head soon became external and loud, and they took on a different voice. A deep, loud, growling voice telling me to “kill yourself” or “worthless piece of crap” or “idiot” or “people hate you”. Then one day the voice said “cut” so I did. I don’t know why I did or why I listened, but I did. I cut in places no one could see, but I cut. I cut my arms, my chest, my stomach, my thighs. I still look at the scars and wonder why I cut myself, but in some way those scars are my friends and I’m fond of them.

During that time, the early 1980s, I was in and out of hospitals. Diagnosed as manic/depressive, then with borderline personality disorder, then borderline paranoid schizophrenic, then this and then that. Ah, the inexact science of psychiatric medicine in the 1980s. Tell me, is it any more exact today? Eventually someone hung the label “acute psychotic major depressive disorder” on me and it stuck. But with differing diagnoses comes differing pharmaceuticals. Artane, Navane, Elavil, Mellaril, Thorazine, Stellazine, Ritalin, lithium, Nardil, and probably a dozen others I can’t recall. You think the dry mouth or limp noodle side effects from Paxil is bad? You take Thorazine and then come talk to me. All the while, though, the voice kept talking to me, telling me to “cut”, “kill”, telling me I’m “worthless”.

Many doses of ECT offered no relief either. ECT kills one’s short term memories and yet I still vividly remember the zombie-like feeling following a round of having an electrical current fired through my noggin. Feeling neither happy nor sad. Quite literally devoid of any feeling. An electrically induced temporary lobotomy.

Yet still the voice screamed at me. “Cut yourself.” “You’re worthless, shoot yourself. Now!” Nothing could make the voice stop. Oftentimes the voice was crude and quite vivid in the gruesome plans it wanted me to carry out on myself, but due to decorum I’ll omit those here. If a voice you hear, but nobody else does, telling you awful things to do to yourself doesn’t drive you over the edge then probably nothing will.

After the 7,112,976th time of the voice telling me to “kill yourself” I decided to listen to it. I worked at a hospital and had access to all sorts of festively colored pills and capsules, just ripe for the picking. I swallowed several bottles of anything I could get my grubby hands on. Heart medication, blood pressure medication, migraine pills, tranquilizers, the prescriptions I was currently taking, even a huge bottle of Tylenol. Obviously I was discovered, I’m not writing this from the grave, and they pumped my tummy clean and revived me and then, as punishment for my crime, I was sent for a stay at the lovely and oh so inviting “Timberlawn Sanitarium”, it actually had that name etched in stone over one of the old original buildings that is used as administrative/admissions offices now, in Dallas, Texas for a period of approximately 11 months.

The Timberlawn Psychiatric Hospital facility was incredibly secure. With heavy metal screens over all windows, plexiglass on all the bay windows, doors that lock automatically when shut, etc. You’ll pardon me, I hope, if when I speak of Timberlawn Psychiatric Hospital I speak of it as a prison and of my stay there as a prison sentence. I will refer to the nurses and staff as guards and my psychiatrist as the warden.

Upon induction into Timberlawn, thankfully there was no full body cavity search and no delousing, I was swiftly removed of my shoelaces, my belt, my razor, my nail clippers, and anything else I had which was shiny or sharp. Meals would be served to me by the guards on my cell block until such time as I had earned the trust from the guards and the warden that I wouldn’t try to escape or hurt myself. Then, and only then, would I be allowed to take my meals across campus, the prison yard, and eat in in the dining hall proper. Welcome to your new home, inmate.

When asked to “please release me, let me go” I was told if I didn’t stay voluntarily I would be committed. The frustration of that was immense so I shut down. Refused to talk or take my meds or participate in anything. I wasn’t totally lacking in rational thought, and it quickly dawned on me, after being threatened with restraints and IVs and suppositories, that if I wanted to get out of there any time soon I needed to play the game, follow the rules, and go with the flow. Having my meds forced up my backside just didn’t sound like much of a bargain to me, then or now.

So I settled down and got with the program and within a couple of months I was allowed to go to the gym and go do crafts and walk, under escort by a couple of the guards, to the dining hall for my meals. I also got just crazy good at ping-pong. Every evening after supper it was ping-pong-a-palooza for those of us on the unit who had high enough privileges to walk down the hall to the ping-pong room. And then if you really behave and contribute to group therapy and show you’re serious about your treatment, maybe in six months if you’re lucky, they might let you out, with a guard of course, to go see a movie. Well I hated it. Can you tell? Every blessed moment of it, I hated it. Finally I was discharged, paroled, my illness cured. Yeah right.

Twenty years pass and I’ve fought this nightmare countless times off and on ever since, but for the most part keeping it to myself. I feared if I told anyone I’m hearing the voice again or that I’m incessantly thinking of suicide I’ll be locked away again. Within the past year the voice and my dreadful thoughts have become overwhelming. Over the years it seemed that if I just weathered the storm, waited it out and not acted on the self-destructive thoughts, it would ease up on it’s own and I’d come out of this hellish pit on my own. But this time, for nearly a year, I can’t get out. I can’t control my own thoughts and everyday I wake up contemplating suicide. It’s devouring me. I’m losing the battle. I want to walk into a field and sit down in the cold rain and just let it dissolve me into a puddle.

Once again I find myself frightened of myself. “I hate myself”. “I don’t belong here”. “I am a misfit”. “A freak”. “I want to die”. “My core is rotting”. These are the thoughts that consume me again, each and every day. My brain is being destroyed by the horrible thoughts which I can’t control.

I recently sought help. I am now on the second week of medication consisting of Paxil and Trazodone, but will they work? The best meds of the 70s and 80s did no good. Multiple rounds of shock treatments bought little lasting relief. Long term hospitalization made me angry at and scared of the psychiatric profession. Some may say, “But Dave, you’re alive.” Yes I’m alive, but that’s a small victory if you ask me. A very hollow victory indeed. Almost 30 years since this nightmare began and I can’t wake up from it to escape it.

(Instru-mental-Illness)

April 14th, 2009


(Instru-mental-Illness), originally uploaded by Instrumental Illness.

There was once a little prince with a magic crown and a far away stare. An evil warlock kidnapped him, locked him in a cell in a high tower and took away his voice. There was a window with bars, and the prince kept smashing his head against the bars hoping that someone would hear the sound – and find him. The crown made the most beautiful sound that anyone had ever heard. You could hear it ringing for miles. It was so beautiful that people wanted to grab the air.

They never found the prince. He never got out of the cell.
But the sound he made filled everything up with beauty.

Depression

April 13th, 2009


Depression, originally uploaded by katiealley.

Going up or going down?

My Beating Compass

April 13th, 2009

I took this off of my blog, because of some negative feedback.  I figure realmental.org is more comfortable with my crazy.


Still around.  Posts percolating but not all suitable for a blog that as of yet, has not been found by my parents.  My poor niece is not telling anyone as far as I know and I actually feel awful laying the smack down when I have always known that at any moment someone really tenacious(and technically savvy AND related to me) could find me.  I am trying to find a new domain name that fits what feels like a big change.  I just had a nice time with my mom and told her that on Friday, I found myself so depressed, so profoundly sad and hopeless that I just broke down and sobbed. In my car at first and then made it home to cry to hard I threw up and peed my pants!  Goodbye readers who don’t like to much information!

Of course my mom asked why.  Lots and nothing.  I am mentally ill.  I hate saying those words, but it is true.  I see a psychiatrist regularly and for the rest of my life medication will be tweaked and fiddled with and I will likely have lots of ups and hopefully only a handful of major downs.  So, know I don’t know why on Friday, some horribly song on the radio seemed to trigger a drying episode.  That is whole mystery of depression, bi-polar, these things we suffer from, there is no cure and often no sense to it.  Sure, THINGS happen and we, OK I do not react the way people who don’t suffer from major depression react, but often there is it.  On my radio.  I feel out of control.  Like my car will swerve into oncoming traffic, literally and metaphorically.  I feel like I don’t have control over my own mind, my own heart.  My poor heart that is abuse by both me and my illness.  I am not an innocent party here.  I still let things hurt my heart that I shouldn’t give power to.  Things I should LET THE FUCK GO OF ALREADY.  I feel way too old to not have learned the lessons of self protection.  Forgiving myself.  I cling.  That girl in grade 7 send a note to some other girl that i found saying i was annoying and i can see the handwriting and remember how i felt like it was last week.  LET IT GO.  It is like my heart has this gigantic database of things that hurt and I can conjure them up at anytime.  World’s most reliable software! !  I can search by any parameters – age, hurt by;name, gender, date, what shoes I was wearing, where the hurt took place (that one in grade 10 in the cafeteria was a son of a bitch), the overalls with polka dots were perfect for 1985 though.  <a href=”http://lauriewrites.typepad.com/weblog/”>Laurie</a>, my friend, made friendlier by sxsw, told me twice, briefly, stop giving that power.  Laurie, is smart and wicked in a good way, a great writer, beautiful, wonderful, and you want to be her friend.  She listened to all manner of my blathering while we were in Austin and feel grateful for that.  I wish she could live on mu pocket, not as angel (not that she is’;t one), but as a compass.  I don’t know my emotional direction for shit right now.

Ultimately I know I need to find my own way right?.  The medication will always be there, but surely I can learn right?  I can hard wire some things in my heart to protect it from others.  From myself.  First job ion order for me is where the hell is magnetic north? At least for me.

Jen

Start of Depression

April 12th, 2009


Start of Depression, originally uploaded by zoomzoom2.

A dear friend of mine suffers from depression, and she was trying to describe it to me.

when i showed her this photo of a cloud, she said if you could see the start of depression thats what it would look like for her.