Five Year Cycle Part Three

Part One Here
Part Two Here

Part Three

By Muriel Lipke

After returning to San Francisco in 2007, I was great, for about a year… Then I had another episode which landed me in a doctor’s office.

The difference was that I had done my reading since that first breakthrough episode in 2007 about serotonin and what it does to one’s brain. I knew enough to advocate for myself at this point and so when the general practitioner I had been seeing told me that my list of symptoms I’d compiled following the more recent episode were “all in my head” I fired him and went in search of a doctor who would listen to me.

Which was when I found in Dr. Amatti. The first time I saw her I ran down a lengthy list of about 200 symptoms I had regularly experienced and asked her if she could figure out what was wrong with me. She listened carefully and said that she wanted to run blood work and other tests on me to see what could possibly be in common with my diverse symptoms.

All my life I’ve been particularly sickly. Well – not all my life – I first started noticing that I got sick a lot when I was in my teens. I had been treated for allergies, phantom physical pain, insomnia, night sweats, repeated strep throat and bronchitis, stomach cramps, irritable bowel syndrome, shaking hands, ringing ears, “female troubles,” asthma, random fevers, etc… PLUS depression and anxiety. I was regularly told that I was a flippin’ hypochondriac. So much so that I believed it a little. I didn’t think all those symptoms could be connected — but, after working with Dr. Amatti I learned that they are.

See the thing is my brain doesn’t make enough serotonin for healthy bodily functions. Serotonin doesn’t only control moods – it facilitates the central nervous system! My levels of serotonin were so dangerously low my doctor told me that had I not seen someone when I did that I possibly could have died – either by my own hand – (because I’ll freely admit that I’d contemplated suicide because I felt like such crap,) or because of organ failure.

I was really really sick.

Though, I immediately began to feel a little better as soon as I knew what was wrong with me. My body didn’t make enough serotonin and because I’d gone so long living without healthy levels of it in my body, I’d sustained some minor brain damage. The best the doctors could figure out, I’d become immune to the SSRIs my doctor had put me on the year before, because I was taking a high daily dose over an extended period of time. It happens. I guess.

What they have not figured out is how I got this. Dr. Amatti thinks it’s genetic. Mental illness runs in my family. I think it’s a combination of genetics and trauma from abuse. My therapist agrees with me. All I know is that in the fall of 2008 I was diagnosed conclusively with Post Traumatic Stress Disorder, Major Depression, Anxiety and a dysfunction that they haven’t come up with a name for yet (I keep suggesting mine) where the brain has been permanently damaged due to lack of neurotransmitters over an extended period of time.

I was placed on an aggressive drug therapy. It’s taken me a year to really get back to feeling better at all – but, I’m glad to say that I now do. At the encouragement of my friends and family I got back into therapy. It’s been nice to have someone non-partial to talk things through with, and I think it’s really helped me a lot, at least in feeling like I’m not alone.

I remember asking my therapist shortly after beginning to work with her why it was that I could go for years and years and years without experiencing any symptoms of my mental illness, only to think I was “cured,” and then break down again?

She told me that she thinks that much like I’m going to have to be on drugs for my whole life to deal with the chemical part of my illness, the traumatic events that lead up to my breakthrough episodes are going to be with me my whole life, too. Just that perhaps I will only have to deal with them every so often, in a cycle, usually when there is a trigger to bring it all back up to the surface. I think that’s true because I have noted that every five years or so something seems to happen which has caused me to need to revisit my abuse and deal with issues from it. I work really hard to get through those periods (I’m going through one now) and deal with shit so I can be as normal as possible.

I’m really thankful that I have good doctors now and a family and close friends who understand my illness and support me. Recently I started talking about getting back together with my boyfriend (the love of my life, the one from the start of the story) which has made me feel even more protected than normal. He knows all the dirty details of my trauma and I have been at my absolute worst around him — he loves me regardless. And, really, dealing with mental illness is so much easier when you have people to help you.

There are a lot of people out there – fake friends and such – who enable my bad behavior when I’m going through it or cut me down or make me feel awful about my disease (like I’m making it up or something) that I have had to learn to tune them out in the past couple of years. That’s a hard lesson. I want to be friends with everyone and it took me 35 years to understand that some people are just toxic.

I suppose that’s a lesson for everyone, not just someone struggling with what I’m struggling with.

However, now that I have done that AND gotten on the right medication AND found a therapist who I am comfortable talking to AND developed my support network around myself so that if I fall again there are people there to catch me… I finally feel like me. The me I knew I always was. And, it’s so liberating… to be able to just enjoy my life… it’s freedom from those events which shaped and informed who I became as an adult that I never anticipated having.

Having it makes me grateful.

Posted by leahpeah on January 18th, 2010
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